Our MoveOn.Org Video!

HUGE thanks to MoveOn for letting us tell our story! Lydia is a sweet 4-year-old from Colorado who depends on Medicaid. Tell @SenCoryGardner not to take away her #healthcare pic.twitter.com/9nQeOJUs51 — MoveOn.org (@MoveOn)… Continue reading

Medicaid to Us

Our 4-yr-old daughter Lydia has an unidentified condition that causes brain malformations and frequent seizures. She has never learned to walk or hold her head up. She has never spoken a word or… Continue reading

Undiagnosed Disease Network

Nearly two years ago we applied to have Lydia seen by the Undiagnosed Disease Network (UDN). It is a nationally funded program that supports seven clinic sites across the US to study mystery medical… Continue reading

Lydia is 4!

Lydia is 4! I’m happy to say our girl is doing as well as ever. We are a whirr of therapy appointments, doctors visits, and daily exercises but Lydia remains the calm at… Continue reading

In Colorado Now

So…we did it, we live in Colorado now. It’s a long story for a long night; the buying and selling of houses; packing, selling and giving away of the many possessions we collected… Continue reading