No Glaucoma, Although We Didn’t Know We Should Be Worried in the First Place

Lydia and I spent most of the day at the hospital yesterday with the super-pediatric-glaucoma specialist, Dr. Beth Edmunds. After several tests including an ‘eye ultrasound’ and eye exam, she was deemed as not having glaucoma. Where did all this come from you say? Yeah, no kidding! I’ve been so focused on seizures, seizures, seizures that I was barely thinking about anything coming up in her routine eye exam last Friday.

Our regular super-specialist-pediatric-eye doctor, Charles Bock, was very concerned about changes in Lydia’s eyes during his exam on Friday and sent us for an urgent visit to Dr. Edmunds. During the three days between appointments I flipped out:

Topiramate, one of her medications has been known to cause glaucoma. Could this be related and how fast could I wean her off this stuff?

If she needs surgery how is general anesthesia going to affect her seizures? How will her medications interact? Will we be in the hospital over Thanksgiving?

We are four days from changing insurance! What is going to happen?

Why is she on a glaucoma-causing medication if she has a predisposing condition?! Does she have a predisposing condition? How does this relate to what’s going on with her?

Well luckily and thank goodness Lydia’s eyes are not affected by glaucoma. Not that she can see very well given the whole cortical blindness/brain processing problem. But we’ll take what we can get. So today I’m celebrating another thing she doesn’t have.


Just in case you were wondering – Topiramate and glaucoma: (according to the Royal College of Opthamologists)

– It only causes one type of glaucoma, which is Acute Angle Closure Glaucoma

– It occurs usually in females (80%)

– It occurs within the first two weeks of treatment

– The mean age of occurence is 34 years with a range between 3 and 70 years of age.

i.e., Topiramate is not causing glaucoma in Lydia.