We’re on SWAN

Lydia’s profile has been added to SWAN. Now she’s a unicornblackbirdtime-traveler-swan girl extraordinaire. She’s my pretty darn special little gal.

Syndromes Without A Name USA (SWAN USA) is a non-profit tax exempt organization that advocates for children and young adults who have syndromes without a name. They offer support, advice and information on the challenges that families face when there is no diagnosis. They also advocate for changes in the medical community that will benefit undiagnosed individuals.

http://www.undiagnosed-usa.org/ourchildren/

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