In the Pheno-B hole

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Lydia’s twice-a-day Topamax dose is not working to control her seizures. She still has about 20 seizures a day. So now her neurologist has added in Phenobarbital. It knocks her out. But she’s still having seizures. She just clusters them into her brief awake periods. The doc said she should get used to the drug over a few weeks and not be so sleepy. I hope so, as it is tricky to squeeze in feeding, therapy exercises and playtime during her brief awake spells. It does help with house chores and less-neglecting of her older brother though…

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