Happy birthday lil' Lydia! She is 8-years-old today. Her dad chose a cake with the most delicious frosting (it is the only part of the cake she can eat). Our plan is to go for a family walk after dinner and catch a sunset in this warm weather before a big snowstorm hits this weekend. … Continue reading Lydia is 8!
When we had to return the Tobii Dynavox talker device at the end of the trial period, Lydia became disinterested trying to communicate with her old methods (Yes/No switches and head nods/shakes). She started sleeping through her online learning classes again and wasn't using her switches as much. I guess once she had seen the … Continue reading Trial Device #2
It feels really good to have the Corpus Callosotomy surgery behind us. It was something we had circled for so many years and was the crux of Ultimate Scary Decisions we had to make as parents. She is 99% healed, however, it's five months out and I still had to pull one last bit of … Continue reading New Glasses and (Eventually) New Talker Device
To those of you that were able to donate to the CFCE fundraiser, thank you! We are looking forward to getting Lydia enrolled again once they've finished the move. We will be sure to post updates on her progress. For Halloween, Lydia made a perfect little Frida Kahlo. She has an artist's soul I think. … Continue reading Frida thanks you!
It has been over ten weeks since Lydia’s Corpus Callosotomy surgery. It feels both like the blink of an eye and as if she has always had a scar on her head like that. She is doing well, I am happy to report. Although just last week she was still taking rounds of antibiotics because … Continue reading 10 Weeks Post CC