Okay so I am still writing but not blogging anymore. Maybe I will pick it up again someday. However, if you are craving a read, Mark wrote an excellent article for the Children and Nature Network: https://www.childrenandnature.org/resources/fnn-placemaking-how-to-build-kinship-and-inclusive-park-spaces-for-children-with-disabilities/ I just wanted to let you know that we are doing great and that Lydia is 11! She … Continue reading Lydia is 11!
Lydia is 10!
So many emotions today. Full of gratitude most of all. I don't write so much these days but below is something I have been working on for Lydia's room. Eventually I will post this on her wall with a photo from each year. 2013 I am one of the rare babies who was born on … Continue reading Lydia is 10!
6 Months after Spinal Fusion Surgery
Well hello there. Overdue for an update aren’t I? Lydia had her spinal fusion surgery nearly six months ago now. The surgery itself went smoothly but our hospital stay the week after had its challenges. (There were some communication issues with the hospital team. But I won’t go into all that now.) By the time … Continue reading 6 Months after Spinal Fusion Surgery
Spinal Fusion Surgery, T2-S3
The issue of Lydia’s scoliosis had been worsening rapidly over the last year. She had a big growth spurt as she crashed into puberty early - something not unusual for kids with neurological differences, I was told. It is called “precocious puberty,” which sounds almost cute. We were given the option to delay her puberty … Continue reading Spinal Fusion Surgery, T2-S3
April Issue Colorado Parent Magazine
So exciting, our favorite Unicorn is in the April Issue of Colorado Parent Magazine! With a quote FROM THIS VERY BLOG! We are on page 46, almost the last page. The online edition is here: https://www.coloradoparent.com/read-the-latest-issue/
Lydia Unicorn 